md-medicaldata

Authors

 

Mirjana Smuđa ^1,2, Dragana Milutinović <sup>3

1</sup>Univerzitet u Novom Sadu, Medicinski fakultet / University of Novi Sad, Faculty of Medicine, Novi Sad, Srbija
²Akademija strukovnih studija Beograd, Odsek Visoka zdravstvena škola / The Academy for Applied Studies Belgrade, Department of Higher Medical School; Beograd, Srbija
³Univerzitet u Novom Sadu, Medicinski fakultet, Katedra za zdravstvenu negu / University of Novi Sad, Faculty of Medicine, Department of Nursing; ; Novi Sad, Srbija

 

UDK: 616-083-053.2

The paper was received / Rad primljen: 18.03.2021.

Accepted / Rad prihvaćen: 21.03.2021.

 

Correspondence to:

Mirjana Smuđa
Univerzitet u Novom Sadu, Medicinski fakultet,
Hajduk Veljkova 3, 21000 Novi Sad, Srbija
Tel: 060 01 26 973
e-mail: mirjanasmudja@gmail.com

 

 

Sažetak

 

Zahvaljujući razvoju pedijatrijske/perinatalne medicine i medicinskih tehnologija povećala se i stopa produženog preživljavanja novorođene dece sa potencijalno smrtonosnim oboljenjima i patološkim stanjima. Kada „produženje preživljavanja“ više nije cilj, a prognoze su nepovoljne, medicinski tretman i zdravstvena nega realizuju se uz poštovanje osnovnog etičkog principa „primum non nocere“ i sa ciljem ublažavanja bola i patnje novorođenog deteta; ovakav pristup poznat je pod nazivom „palijativno zbrinjavanje/nega“. Stoga, cilj aktuelnog rada bio je da:

• imenujemo institucije u sistemu visokog obrazovanja koje su dale doprinos u edukaciji zdravstvenih profesionalaca za razumevanje filozofije koncepta palijativnog zbrinjavanja i primenu znanja i veština u praksi;
• opišemo „razvojni put koncepta palijativnog zbrinjavanja u okviru pedijatrijske zdravstvene zaštite“ u Republici Srbiji, sa posebnim naglaskom na specifične standarde koji se primenjuju  u palijativnom zbrinjavanju novorođene dece na osnovu stavova i iskustva profesionalaca i organizacija iz država koje imaju razvijene nacionalne programe palijativnog zbrinjavanja novorođene dece.

Za pretraživanje literature koristili smo sledeće baze: Web of Science, PubMed, SCIndeks, Google Scholar; prema ključnim rečima: perinatal palliative care; neonatal palliative care; neonatal comfort care; nursing; palijativno zbrinjavanje dece i adolescenata; bol; nacionalni program za palijativno zbrinjavanje.Analizirane podatke prikazali smo koristeći deskriptivnu metodu.
Palijativno zbrinjavanje novorođene dece je veoma kompleksna problematika koja pored znanja i veština iz oblasti neonatologije i zdravstvene nege u neonatologiji, iziskuje razumevanje potreba porodice koja se suočava sa teškoćama usled gubitka deteta i podrazumeva aktivno pružanje podrške roditeljima/sestrama/braći u prevazilaženju  bolnih emocionalnih i psiholoških iskustava.

 

 

 

Ključne reči:

palijativna nega; palijativno zbrinjavanje dece; novorođenče; bol; pedijatrija;

 

 

 

Abstract

With the development of pediatric/perinatal medicine and medical technologies, the rate of prolonged survival of newborns with potentially fatal diseases and pathological conditions has increased. When "prolongation of survival" is no longer the goal, and the prognosis is unfavorable, medical treatment and health care are realized with respect for the basic ethical principle of "primum non nocere" and with the aim of alleviating the pain and suffering of the newborn child; this approach is known as "palliative care". Therefore, the aim of the current article was to:
• appoint institutions in the higher education system that have contributed to the education of health professionals to understand the philosophy of the concept of palliative care and the application of knowledge and skills in practice;
• describe the "development path of the concept of palliative care in pediatric health care" in the Republic of Serbia, with special emphasis on specific standards applied in palliative care of newborns based on the views and experiences of professionals and organizations from countries with developed national palliative care programs for newborn children.
To search the literature, we used the following databases: Web of Science, PubMed, SCIndeks, Google Scholar; by keywords: perinatal palliative care; neonatal palliative care; neonatal comfort care; nursing; palliative care for children and adolescents; pain; national palliative care program. We presented the analyzed data using a descriptive method.
Palliative care of newborns is a very complex issue which, in addition to knowledge and skills in the field of neonatology and health care in neonatology, requires understanding of the needs of families facing difficulties due to child loss and involves active support to parents / sisters / brothers in overcoming painful emotional and psychological experiences.

 

 

Key words:

palliative care; palliative care of children; newborn; pain; pediatrics

 

 

 

 

References:

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