md-medicaldata

Authors

 

Slobodan Sekulić¹, Anđelija Petrović², Tatjana Redžek-Mudrinić³, Ivana Peričin-Starčević³, Modra Murovska<sup>4

1</sup>Klinika za Neurologiju, Klinički Centar Vojvodine, Medicinski Fakultet Novi Sad, Novi Sad, Srbija
²Medicinski Fakultet Novi Sad, Novi Sad, Srbija
³Klinika za Pedijatriju, Institut za Zdravstvenu Zaštitu Dece i Omladine Vojvodine, Medicinski Fakultet Novi Sad, Novi Sad, Srbija
⁴August Kirchenstein Institute of Microbiology and Virology, Riga Stradins University, Latvia

 

The paper was received on 20.04.2017 / Accepted on. 25.05.2017.

 

Correspondence to

Slobodan Sekulić,
Klinički Centar Vojvodine, Klinika za Neurologiju,
Medicinski Fakultet
21000 Novi Sad, Hajduk Veljkova 1-7,
e-mail: nadlak@yahoo.com
e-mail: slobodan.sekulic@mf.uns.ac.rs
telefon 0643886715

 

 

Abstract

 

Chronic Fatigue Syndrome (CGS) is a complex medical entity with a severe acquired fatigue of unknown cause as a hallmark. Fatigue is continually present for at least 6 months with various degree of disability. Published data about prevalence in general population of the USA varies between 0.007% and 2.8%. Incidence of CFS in general population is 180 per 100 000 persons. This syndrome represents significant socioeconomic burden for patients, their families and community. Direct costs are related to diagnostic program and medical treatment. Indirect costs are caused by: decreased working productivity, sick leave, and increased use of the social care. The annual total value of lost productivity in the United States was $9.1 billion, which represents about $20,000 per person with CFS. In Great Britain with population of 65 million, estimated annual losses because of decreased productivity caused by CFS could be as high as 102.2 million pounds. Data about incidence of patients with the CFS as well as socioeconomic impact in Republic of Serbia are missing. Joining to COST Action “CA15111 - European Network on Myalgic Encephalomyelitis/Chronic Fatigue Syndrome” Republic of Serbia will alleviate access to the basic medical knowledge as well as clinical praxis related to the CFS. Introducing protocol as a tool for making diagnosis of CFS will provide data about incidence of CFS. Identification of the patients with CFS, establishing national database, will allow access of the patients to clinical research centers in Europe with final goal of proper therapy.

 

 

 

Key words:

Chronic fatigue syndrome, myalgic encephalomyelitis, consequence, Serbia

 

 

Sažetak

 

Sindrom hroničnog zamora (SHZ) je kompleksni medicinski entitet čije je glavno obeležje izražena stečena slabost nepoznate etiologije, a koja je prisutna najmanje 6 meseci u kontinuitatu i limitira funkcionalni kapacitet pacijenta i uzrokuje različit stepen njegovog onesposobljavanja. Publikovani podaci ukazuju da prevalenca SHZ u opštoj populaciji u SAD varira u zavisnosti od studije do studije i iznosi od 0.007% do 2.8%. Incidenca (SHZ) je oko 180 slučajeva na 100 000 stanovnika ili 0.18%. Ovaj sindrom predstavlja značajan uzrok socioekonomskog opterećenja za obolele osobe, njihovu familiju kao i društvenu zajednicu. Direktni troškovi bolesti se odnose na medicinske radnje koje su deo dijagnostičkog programa i lečenja. Indirektni materijalni troškovi su posledica: 1. smanjene produktivnosti, 2. odsustva zbog bolovanja, 3. zavisnosti od socijalne pomoći. Procenjeni ukupni godišnji troškovi nastali usled ovog sindroma u USA su 9.1 milijarda dolara ili 20 000 dolara po jednom pacijentu obolelom od CFS. Procenjuje se da je u Velikoj Britaniji koja ima 65 miliona stanovnika godišnji gubitak zbog neproduktivnosti usled odsustvovanja sa posla osoba obolelih od SHZ 102.2 miliona funti. Podaci o incidence obolelih i socio-ekonomskom značaju SHZ u Republici Srbiji nedostaju. Pridruživanje Republike Srbije COST Akciji "CA15111 - European Network on Myalgic Encephalomyelitis/Chronic Fatigue Syndrome” će omogućiti transfer znanja i kliničke prakse iz zemalja Evropske Unije u odnosu na ovo oboljenje. Uvođenje protokola za postavljanje dijagnoze CFS će omogućiti utvrđivanje njegove incidence. Prepoznavanje SHZ, formiranje nacionalnog registra pacijenata bi omogućilo pacijentima pristup najsavremenijim dijagnostičkim i istraživačkim centrima Evrope sa ciljem odgovarajuće terapije.

 

 

Ključne reči:

Sindrom hroničnog umora, mijalgički encefalomijelitis, posledice, Srbija.

 

 

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